May 20, 2024
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May 20, 2024
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Riding Life’s Roller Coaster: Navigating Parkinson’s With Resilience

(Courtesy of Parkinsons Wellness Project) Living with Parkinson’s disease is akin to riding life’s roller coaster, where every twist and turn feels amplified. In the whirlwind of symptoms and challenges, there lies a rhythm—a dance of resilience and determination.

From the outside, it may seem like a daunting journey, an endless onslaught of symptoms and obstacles. But within this chaos, there’s a beauty—a reminder that within every challenge lies an opportunity for growth.

As someone navigating this tumultuous ride with Parkinson’s, I’ve experienced the highs and lows firsthand. There are moments when my voice falters, my body trembles, and dyskinesia sets my head and torso swaying. Tasks that once seemed simple become Herculean feats in the face of apathy, irritability and anxiety.

Yet, amidst these struggles, there’s a resilience that emerges—a determination to seize each moment and wring out its potential. Change is the only constant, magnified when Parkinson’s enters the picture. Medications and routines offer temporary respite, but inevitably, something shifts—the ground beneath me feels unsteady once more.

But within this unpredictability, there’s a silver lining—a reminder that within every challenge lies an opportunity for growth. With a vigilant eye on sleep, diet, hydration and stress, I navigate the labyrinth of Parkinson’s, making micro-adjustments to optimize my quality of life.

Crucial to this journey is the support network that surrounds me—the friends, soulmates and medical experts who lend their wisdom and compassion. Through their guidance, I find solace in knowing that I’m not alone; that together, we can weather any storm Parkinson’s throws our way.

Yes, there are moments when a new challenge emerges, when the weight of Parkinson’s feels insurmountable. But in those moments, I find strength in the present—the here and now, where possibilities abound, and the promise of improvement beckons.

In the roller coaster of life, Parkinson’s may add twists and turns, but it also offers moments of clarity, of resilience and of profound gratitude for the gift of the present. And in that realization, I find the courage to keep riding, knowing that with each revolution, I’m one step closer to mastering the art of living with Parkinson’s.


Parkinsons Wellness Project to Host A New Series: Discover Neuro Health Resources

Parkinsons Wellness Project (PWP), a leading nonprofit organization dedicated to enhancing awareness, education and support for individuals with Parkinson’s disease (PD), is thrilled to announce a series of upcoming wellness events aimed at empowering those living with PD and their caregivers.

The “Discover Neuro Health Resources” series will feature prominent medical experts and inspirational stories, offering invaluable education and support to the Parkinson’s community. These events, held at the Crowne Plaza Hotel, Suffern, New York, and also live-streamed, are scheduled as follows:

  1. Discover Hartford HealthCare: PD Comprehensive Care
  • Date: Sunday, April 7
  • Time: 9:30 a.m. to 2 p.m.
  1. Discover Mount Sinai: Multidisciplinary Approach for PD
  • Date: Sunday, May 5
  • Time: 11a.m. to 2 p.m.
  1. Discover Columbia University Medical Center: Patient Empowerment, Research, Advanced Treatment
  • Date: Thursday, June 6
  • Time: 5 to 7:30 p.m.

Susan Lust, Director of PWP, emphasized the critical need for education in navigating the complexities of Parkinson’s. “We are excited to host these three events for those experiencing PD and their care partners to learn from top experts in the field. Breaking the stigma, understanding the disease, and learning effective coping strategies can dramatically improve life with Parkinson’s.”

The Discover Series will bring together leading physicians, healthcare professionals, researchers and Parkinson’s care teams from each hospital system to share best practices and address health concerns. Attendees will gain valuable insights into managing PD and leading healthier lives.

A satisfied participant praised PWP for its invaluable support: “PWP has been a life saver for my mother… by learning from the experts: the PWP Workout Program, informative workshops, and most recently the Care Partner Support Group are guiding lights …”

These interactive, in-person events will also be available virtually, ensuring accessibility for all. Each event will feature kosher buffets and ample time for socializing, thanks to the generous support of sponsors including Abbvie, Supernus, Abbott, Acadia, Kyowa Kirin, Acorda, Boston Scientific, Amneal and Medtronic.

Tickets for these events can be purchased online, with registration required due to limited seating. For more information, visit or call 845-300-4511.

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